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For over 20 years, we have supported patients, families, friends, and communities with best-practice care, information, and resources for Spinal Muscular Atrophy (SMA). During this time, we have witnessed a profound transformation in the SMA landscape - one that has turned loss into hope.
For many years, there were no medicines available for SMA. However, innovation over the past decade has transformed the SMA landscape as families now have access to treatments.
Three medicines are currently available in Australia that can help slow or stop the progression of SMA. These treatments are not considered a cure for SMA but may improve muscle function and life expectancy. However, the long-term effects of these medicines are still being studied.
A multidisciplinary healthcare team will support you throughout your journey with SMA. This team should include a General Practitioner (GP), a neurologist, nurses and other healthcare professionals with experience in SMA. Other specialists such as a paediatrician, physiotherapist, occupational therapist and/or speech therapist can also make up the multidisciplinary healthcare team.
Additionally, people with SMA may require treatment for related conditions, including sleep disturbances, breathing difficulties and bone health issues.
Your healthcare team will provide detailed information about available treatments and develop a personalised management plan tailored to you or your child's needs.
Join a powerful community of supporters who are helping tackle spinal muscular atrophy at its very core. Our community relies on us for support and best-practice resources to guide them in living well with SMA, as well as for resources to help raise disease awareness, educate others and advocate for people living with SMA in the wider Australian community.
