Our Community

At the heart of SMA Australia is our community of people living with SMA and their loved ones. We are proud of the community we have built and continue to foster this important network. We bring the SMA community together through initiatives including: 

  • Peer-to-peer support programs connecting individuals and families of children who have been newly diagnosed with SMA to members of our community who have been in their shoes, helping them to navigate the next steps on their journey with this condition
  • Announcements detailing latest developments in the SMA treatment landscape, recommended support services, community highlights and upcoming events
  • Events, volunteer opportunities and advocacy initiatives to provide our community the opportunity to connect with each other and the wider community
  • Promoting awareness and inclusiveness of people living with SMA, within our community and beyond
  • Providing information and community feedback to organisations involved with research, treatments and funding for SMA
Get Involved

Learn about how you can participate in SMA Australia’s fundraising and advocacy initiatives.

Get in Contact

Fill out our contact form, get in touch via mail or email, or follow us on Facebook and Instagram.

News & Upcoming Events
news-flash
November 1, 2024
NEWSFLASH! Evrysdi PBS Listing Expansion – 3 copies SMN2

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expansion-victoria
March 21, 2024
NEWSFLASH! NBS Expansion to Victoria

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spiranza
March 1, 2024
NEWSFLASH! Spinraza PBS Listing Expansion

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Support Us Today

Join a powerful community of supporters who are helping tackle spinal muscular atrophy at its very core. Our community relies on us for support and best-practice resources to guide them in living well with SMA, as well as for resources to help raise disease awareness, educate others and advocate for people living with SMA in the wider Australian community. 

Make a donation