Fundraising is an important part of our work at SMA Australia. As a not-for-profit organisation, donations help us continue to support and advocate for our SMA community.
If you are looking to fundraise for SMA Australia through an event, sponsored challenge or even a garage sale, please email us at reception@smaaustralia.org.au for more information on our fundraising guidelines and how we might be able to help.
You may also wish to raise funds using social media, where you can share our link to donate with your family and friends.
Donations in lieu of flowers can be made to honour the life of a loved one. We thank you for your generosity at this difficult time.
If you would like to request donations in lieu of flowers from family and friends, please email us at reception@smaaustralia.org.au and we will help you organise donation cards and envelopes, which can be sent to a funeral home directly, or handed out at an event.
Naming SMA Australia in your Will is a powerful and generous gift; one that will extend beyond your lifetime. Together with SMA Australia, you can help create a future where all people living with SMA have access to the care and support they need.
You can make a bequest to SMA Australia by:
Please contact your solicitor or trustee to assist you with including SMA Australia in your Will.
For further information on leaving a gift in your Will to SMA Australia, please contact reception@smaaustralia.org.au
Corporate sponsorships are a welcome form of support for our work at SMA Australia. As a not-for-profit organisation, corporate generosity helps us to continue providing support and advocating for our SMA community.
There are many ways to get involved as a corporate sponsor, such as through a charitable donation, sponsorship of prizes of giveaways, or volunteering your time at an event.
If you are thinking about becoming a corporate sponsor, we invite you to have a discussion with one of our committee members, who can take you through ways you can help and find an opportunity that works with your vision and budget. Please contact us at reception@smaaustralia.org.au to arrange a conversation.
The Australian Neuromuscular Disease Registry (ANMDR) is national disease registry, launched in January 2020, that includes both children and adults across Australia with genetic neuromuscular conditions. The ANMDR is part of a global collaboration of registries established by TREAT-NMD and aims to advance scientific knowledge, attract clinical trials to Australia, and facilitate clinical research, best practice care and health services provision in a national context.
We encourage everyone living with SMA to sign up with the ANMDR. There are more than 200 people with SMA currently registered on the ANMDR.
The registry is managed by the Murdoch Children’s Research Institute (MCRI).
You may wish to be come a member of Spinal Muscular Atrophy Association of Australia Inc . The charity receives no Government funding and relies on sponsorship, memberships and generous donations so they can provide support services to SMA families.
Membership includes:
Join a powerful community of supporters who are helping tackle spinal muscular atrophy at its very core. Our community relies on us for support and best-practice resources to guide them in living well with SMA, as well as for resources to help raise disease awareness, educate others and advocate for people living with SMA in the wider Australian community.
